The sociology of entrenchment: a cystic fibrosis test for everyone?

In this article we introduce the notion of entrenchment to conceptualize the processes in which new technological options, through the interactions between a variety of actors, become viable and established practices in society, both satisfying and modifying needs and interests. The notion of entrenchment we use as a framework for an analysis of developments and debates in the field of cystic fibrosis testing and screening in Denmark. On the one hand, it appears that the development and introduction of cystic fibrosis (CF) screening to some extent is predetermined both by existing networks of human genome researchers, clinical geneticist, patients (organizations),funding organizations, and regulatory agencies, and by existing practices like that of prenatal diagnosis. On the other hand, in Denmark, the content and future of CF screening is shaped in ongoing processes or articulation of demand for screening and of its cultural and political acceptability, processes which also involve political decision-making and which (may) result in new networks and regimes. Yet, what appears to be an inherent and undecided part of the process of entrenchment of CF screening in Denmark, is how to allocate responsibilities and authority to decide what is acceptable and what not

Science and Technology Governance and Ethics - A Global Perspective from Europe, India and China

This book analyzes the possibilities for effective global governance of science in Europe, India and China. Authors from the three regions join forces to explore how ethical concerns over new technologies can be incorporated into global science and technology policies. The first chapter introduces the topic, offering a global perspective on embedding ethics in science and technology policy. Chapter Two compares the institutionalization of ethical debates in science, technology and innovation policy in three important regions: Europe, India and China. The third chapter explores public perceptions of science and technology in these same three regions. Chapter Four discusses public engagement in the governance of science and technology, and Chapter Five reviews science and technology governance and European values. The sixth chapter describes and analyzes values demonstrated in the constitution of the People’s Republic of China. Chapter Seven describes emerging evidence from India on the uses of science and technology for socio-economic development, and the quest for inclusive growth. In Chapter Eight, the authors propose a comparative framework for studying global ethics in science and technology. The following three chapters offer case studies and analysis of three emerging industries in India, China and Europe: new food technologies, nanotechnology and synthetic biology. Chapter 12 gathers all these threads for a comprehensive discussion on incorporating ethics into science and technology policy. The analysis is undertaken against the backdrop of different value systems and varying levels of public perception of risks and benefits. The book introduces a common analytical framework for the comparative discussion of ethics at the international level. The authors offer policy recommendations for effective collaboration among the three regions, to promote responsible governance in science and technology and a common analytical perspective in ethics

BAN-Based m-health Services: Experiences and Prospects

The University of Twente and partners are developing and prototyping Body Area networks (BANs) for healthcare. We define a BAN as a network of devices worn on or around the body which communicate amongst themselves and perform a set of services for the user. Our work began with the European MobiHealth project whose objective was to investigate the potential of 2.5 and 3G wireless communication technologies to support useful services and applications. In this article we discuss the main aims and results of the MobiHealth project. On the basis of these results we further discuss a particular methodology which we believe gives leverage on the problem of managing the complex of objectives and expectations of the different parties involved in the process of design, development and implementation of ICT systems for healthcare. This methodology aims at articulation and translation of the visions and expectations of both designers and prospective users in future development scenarios. These scenarios may be used to specify potential uses of health BAN technology in particular contexts, to anticipate and evaluate possible outcomes and effects, and to feed back insights obtained from this anticipatory technology assessment into the ongoing process of design, development and deployment